Fraser Syndrome & Me
SOUTH DAKOTA PREMIERE
Genre: Short Documentary
Location: Gurnee, IL
Q&A with KYLE ANNE GRENDYS
Cast & Crew
DIRECTOR/EDITOR Kyle Anne Grendys
COMPOSER Patty Walters
ARTIST Rachel Walters
ASSISTANT EDITOR Richard Wilkerson, Josh Mallett, Maggie Rosario
At the time of her birth, filmmaker Kyle Anne Grendys was only the 75th person to be born with the rare, recessive gene disorder called Fraser Syndrome. Having always felt alone in the world, she sets out on a journey to find her community and finally meets others just like her.
From the moment I could hold a camera, I knew I would grow up to make this film. Making “Fraser Syndrome & Me” gave me the opportunity to give to others what I needed growing up. I needed to know that I wasn’t as alone as I felt. My family needed to know that there were others out there going through the same journey. That yes, it is going to be a long and sometimes difficult road, but there is hope. After all of my traveling, I can honestly say that the individuals I met who have Fraser Syndrome are some of the best people. Everyone would enjoy hearing their stories and have the pleasure of knowing them. It is clear that these individuals have experienced a lot of hardships, but they choose to be loving and kind. Parents that have endured these hardships continue to fight and believe in their child when the world does not. I started this journey feeling utterly alone. But now, I can’t believe how lucky I am to be a part of this beautiful family.